Thursday, May 26, 2011

Next three weeks of appointments

We are starting our countdown for appointments for Brooklynn this next few weeks. On Tuesday we went to the sleep clinic for evaluation of her sleep patterns. They informed me that she has the potential to have an asthma/reactive airway disease diagnosis due to how sick she gets and how frequently she has a cough and requires some sort of treatment. We did start her on Prevacid 3 weeks ago to see if her nighttime symptoms could be caused by reflux (breath holding, snoring, tossing and turning) and the reflux could be causing more swelling. It has seemed to help substantially, but she still has minimal snoring, occassional stridor, still wakes up about 2-4 times a night, and wakes up coughing quite a bit. Due to all this they felt like she needed a sleep study, which will be done on June 2nd. We have to be there at 7:15, at which time they place 20+ wires on her head and body and expect her to sleep through the night...that ought to be interesting!! We also learned something new - she has a high arched grooved palate, which might be some of the problem. It means her airway is smaller than most in her mouth, which if she has any swelling in her throat (aka swollen adenoids and tonsils) this could potentially make things worse. She is also a mouth breather, and when she coughs she sounds tight. I was thinking - great just one more thing to add to the list when we see genetics...

On Tuesday night we took her to her pediatrician due to her having a cough and being REALLY irritable. They tried giving her albuterol nebulizer treatment, which she screamed and hollered the WHOLE time and did not seem to improve. However, we were told to try to albuterol breathing treatments at home if she has a coughing attack and see if that helps. If it works 2-4 times, than we will be diagnosing her with asthma. Yikes. The doctor did not hear a murmur this time, which she said is encouraging.

Next week we go for Brooklynn's 15 month appointment on Wednesday, and than Thursday night is our sleep study. On June 6th we go see genetics and on June 8th we see cardiology. So we have lots of unknowns that will hopefully be answered within the next two weeks! I am REALLY nervous but really glad to have that chapter done. Let's just hope they all clear us and say that everything is perfectly normal and we can start living without doctors appointments all the time!!

Well there is my update on Brooklynn!! Izzy finished her first year of school last week, and she loved every minute of it. I have a feeling next week she will start realizing she is not seeing her friends and her teacher and will be really upset. But we will be going back to that school next year so hopefully she will have some friends in her class!

Tuesday, May 3, 2011

More Tests?

We took Brooklynn in to her pediatrician tonight because she has still been having problems with her breathing at night. She goes from snoring, to coughing and pausing her breath, to stridorous breaths. She also have periods that are almost like she is sobbing in her sleep that lasts for 10 to 15 minutes. We have brought it up at previous appointments, but it never really worried me too much. But it hasn't improved, and if anything it has increased in her snoring.

Dr. N. said we would try a couple of things. First, we will try the prevacid again (she was on that her first 6 months of life) to see if maybe reflux is causing swelling and making it worse. She said if that doesn't improve it in two weeks to call and she will prescribe a nasal allergy medicine to see if it is swelling in her nose. We already know that her adenoids and tonsils have been swollen in the past, but we need to get her to at least 18 months of age before they will even THINK about doing any surgery. So hopefully these will solve those issues. We are going to be referred to the sleep clinic as well to do a sleep study. She said this takes a while to get into, so that should give us time to know if the other two options are working, and if they are we will cancel. If not, we will be scheduled for a sleep clinic.

She weighed 26.6 pounds today which was crazy! She is getting to be such a big girl.

When Dr. N was listening to her she heard a murmur. She said it was faint and hard to hear, but she had not heard it previously in other exams (and other doctors have listened to her and they had not heard it). She had a murmur when she was younger, but it went away. So she wants us to go see cardiology and get an echo done to make sure it is benign. She said with her breathing stuff it might be a good idea to check it out just in case. So one more test my poor baby has to go through.

But that is it. Her ears looked great - which is wonderful news to us since we have had so much trouble with them in the past!

PS - Izzy is doing great! She is super active and always singing and dancing! She sings "ABCs" "Twinkle Twinkle", "Farmer in the Dell", etc and knows almost every word! It is super cute! I think the older she gets the cuter she gets! Too bad she is starting to learn how darn cute she is and using it to her advantage :).