We are starting our countdown for appointments for Brooklynn this next few weeks. On Tuesday we went to the sleep clinic for evaluation of her sleep patterns. They informed me that she has the potential to have an asthma/reactive airway disease diagnosis due to how sick she gets and how frequently she has a cough and requires some sort of treatment. We did start her on Prevacid 3 weeks ago to see if her nighttime symptoms could be caused by reflux (breath holding, snoring, tossing and turning) and the reflux could be causing more swelling. It has seemed to help substantially, but she still has minimal snoring, occassional stridor, still wakes up about 2-4 times a night, and wakes up coughing quite a bit. Due to all this they felt like she needed a sleep study, which will be done on June 2nd. We have to be there at 7:15, at which time they place 20+ wires on her head and body and expect her to sleep through the night...that ought to be interesting!! We also learned something new - she has a high arched grooved palate, which might be some of the problem. It means her airway is smaller than most in her mouth, which if she has any swelling in her throat (aka swollen adenoids and tonsils) this could potentially make things worse. She is also a mouth breather, and when she coughs she sounds tight. I was thinking - great just one more thing to add to the list when we see genetics...
On Tuesday night we took her to her pediatrician due to her having a cough and being REALLY irritable. They tried giving her albuterol nebulizer treatment, which she screamed and hollered the WHOLE time and did not seem to improve. However, we were told to try to albuterol breathing treatments at home if she has a coughing attack and see if that helps. If it works 2-4 times, than we will be diagnosing her with asthma. Yikes. The doctor did not hear a murmur this time, which she said is encouraging.
Next week we go for Brooklynn's 15 month appointment on Wednesday, and than Thursday night is our sleep study. On June 6th we go see genetics and on June 8th we see cardiology. So we have lots of unknowns that will hopefully be answered within the next two weeks! I am REALLY nervous but really glad to have that chapter done. Let's just hope they all clear us and say that everything is perfectly normal and we can start living without doctors appointments all the time!!
Well there is my update on Brooklynn!! Izzy finished her first year of school last week, and she loved every minute of it. I have a feeling next week she will start realizing she is not seeing her friends and her teacher and will be really upset. But we will be going back to that school next year so hopefully she will have some friends in her class!
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